This dementia is highly misunderstood, even in the medical community, and takes families up to 4 years to get a proper diagnosis. They will explain what signs show up first, how to get an accurate diagnosis, and what to do after you receive the diagnosis.
Sharon Hall is a Frontotemporal Degeneration (FTD) care partner and advocate. She cares for her husband, who has FTD, as well as having her 95 year old mother living with them who has vascular dementia. Sharon has presented at CMS webinars, The NIH Research Summit on Dementia Care and Services, The National Caregiving Conference, and does a monthly podcast with Dr. Geri Hall from Banner Alzheimer's as well as a FTD care partner chat every Monday and Saturday at 7:00pm ET on caregiving.com. She is the recent recipient of the National Caregiving Advocacy Award. Sharon is involved as a volunteer and support group facilitator for AFTD (theaftd.org), as well as being on the advisory board of the Georgia Alzheimer's and Related Dementia Plan. She is currently working with the Dementia Action Alliance (daanow.org) to form a care partner council to assist their work in helping those living with all dementias.