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Caregiver Support Teleconnection Events Frontotemporal Degeneration (FTD): Misdiagnosed and Misunderstood

Frontotemporal Degeneration (FTD): Misdiagnosed and Misunderstood

Registrations are closed for this event

Join Zoy Kocian from the Association for Frontotemporal Degeneration for an informative discussion on this often misdiagnosed and misunderstood disease. Learn how Frontotemporal Dementia (FTD) differs from other types of dementia, explore its subtypes and symptoms, and discover the supports and services available to help families navigate the challenges of FTD.

 

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Presenter

Zoy Kocian
Zoy learned about AFTD after her mom was diagnosed with FTD in 2012. She began attending support group meetings with her dad that year and volunteered for her first AFTD event shortly after that. Zoy soon became committed to raising awareness about AFTD and FTD through volunteer-driven campaigns like With Love, Food for Thought, and the AFTD-Team. Her efforts led her to become an AFTD Regional Coordinator Volunteer in 2016, and while she stepped down from that role in 2019, about a year after her mother passed away, she never stopped her fundraising and awareness efforts. In 2024, after co-hosting an AFTD Meet & Greet and attending the AFTD Education Conference, Zoy decided to get more involved with FTD advocacy by becoming an AFTD Ambassador.

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