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This dementia is highly misunderstood, even in the medical community, and takes families up to 4 years to get a proper diagnosis. They will explain what signs show up first, how to get an accurate diagnosis, and what to do after you receive the diagnosis.
Date May 28, 2024
Hosted By WellMed Charitable Foundation
Time of Event 11:00 am to 12:00 pm CST
Tags Aging, Alzheimer's and Dementia, caregiver, caregivers, caregiving, Communication, dementia, elderly, family, Frontotemporal, Frontotemporal Degeneration, Hall, Health and Wellness, seniors, Sharon, Sharon Hall, Support
Sharon Hall
Sharon Hall is a care partner, to her 96 year old mother who has vascular dementia and lives with her and her husband, Rod, who has frontotemporal degeneration (FTD). Sharon is an active advocate for FTD, she is an AFTD support group facilitator and educator. She holds an FTD chat on caregiving.com every Monday and Saturday at 7:00pm ET, and hosts a monthly podcast on the 4th Thursday of each month at 2:00pm ET called “Talking FTD”, on blogtalkradio.com/caregiving. Sharon has participated in Medicare webinars, spoke as a care partner at the NIH Research Summit on Dementia Care and Services, is active in her state Alzheimer’s and Related Dementia Plan, and recently launched iCARE (Innovative Caregiving Advocates with Real Experience) along with MaryAnne Sterling, Denise Brown, Julie Fleming and Karen Garner. This is a group of advocates who will leverage the extensive knowledge and experience family caregivers have acquired through caregiving to transform health research, health policy, and healthcare delivery.
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